Campaign news and updates

Press Release: Government response to the Choice Review

The Government has published its response to the independent review of choice in end of life care. The End of Life Care Coalition welcomed the response and the National Commitment to improve the care people at the end of their lives receive in and out of hospital.

The End of Life Care Coalition is working to hold the Government into account to deliver on its commitment. Click here to read the government response.

Press Release: End of Life Care Coalition report

The End of Life Care Coalition is urging the government to adopt the recommendations of the landmark independent review of choice at the end of life, which was published a year ago today. Recommendations in the review include access to 24/7 community nursing and a record of a person’s preferences for care at the end of life.

According to new figures released today by the End of Life Care Coalition’s report On the Brink: The Future of End of Life Care an estimated 48,000 people in England experienced poor care in the last 3 months of their life. This represents 10 per cent of people who died in 2014 and is based on responses from relatives and carers collected by the Office of National Statistics.

The new Coalition report argues that shifting care out of hospitals will be better for people at the end of life and more cost effective but also warns that the right support needs to be in place at home and in other settings to enable this to happen.

Click here for the full press release.

Press Release: End of Life Coalition statement on Spending Review

As a coalition of charities committed to improving end of life care, we asked the Chancellor to commit to fully funding improvements in end of life care ahead of the spending review. We did not get this pledge today and that is a missed chance. Urgent investment is needed now to deliver higher quality services and more choice for people at the end of their lives.

Click here for the full press release.

Press Release: 1.4 million people could die in hospital against their wishes

Over the course of the next Parliament, approximately 1.4 million people could die in hospital when their preference was to die at home, according to new figures released by the End of Life care campaign.

Click here for the full press release.

Health Select Committee calls for free social care at the end of life

After conducting a full inquiry into end of life care, the influential cross-party Health Select Committee has made a series of powerful recommendations that reinforce our joint campaign. The Committee strongly recommended the introduction of free social care for people at the end of life, 24/7 end of life care for those outside hospital and better care coordination. In addition the committee highlighted the significant gaps in data collection and how this has limited improvement in service delivery, and called for more research into palliative and end of life care. These issues have been at the very heart of our campaign and we are pleased that the Committee has recognised the importance of the need for better end of life care. We now hope all political parties will include free and fast social care for people at the end of life in their forthcoming manifestos, and recognise the critical need for improvements to end of life care.
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Review of choice in end of life care report published

The independent review of choice in end of life care has published its final report, calling for a new ‘national choice offer in end of life care’ backed up by an additional £130 million from the next spending review. Building on the findings of previous inquiries, the review calls for access to fast and free social care for people at the end of life, 24/7 end of life care for those being cared for outside hospital as well as care co-ordination through care coordinators by 2019. The report can be accessed here, with Health Minister Norman Lamb’s statement here.
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Health Select Committee consider end of life care

The cross-party Health Select Committee in the House of Commons is carrying out an inquiry into end of life care. All members of the campaign provided written evidence to highlight our main concerns and recommendations for reform, with three partners providing oral evidence as well. Find out more

Independent review to consider expanding choice and improving the quality of end of life care

In July 2014, the Government announced an independent review to look at choice in end of life care. The review, chaired by Claire Henry, Chief Executive of the National Council for Palliative Care, is due to report before the General Election and we hope it will help to shape future policy. Find out more